to SarahInks.com! We hope you'll spend some time to learn about
Sarah and Juvenile Batten Disease. With your help, research will
continue to find a cure for this rare disease.
Sarah Inks may never know the pride of earning a college diploma.
She may never know the joy of that first bridal kiss or a newborn
child. And she may never know she's dying. That's the way her parents
want it. Sarah has a degenerative genetic disorder that destroys
brain cells until its victims can't walk, talk or eat. They usually
die before they turn 21. Since she was diagnosed with Juvenile Batten
Disease in the spring, the 9-year-old has gone blind. Read
A special account has been established should you wish to send Sarah
direct donation. Click here for more
and her family were recently surprised by friends who held a
fundraiser for her. The event was covered in the Omaha World
Herald newspaper. You may read a PDF version of the article by clicking
(You can get free Adobe Acrobat Reader
read the article if needed).
family and friends wish to extend heartfelt appreciation to the
Omaha World Herald for allowing us to use their article on our web